Akintunde Ogundipe lives on
I later discovered that Akintunde died from Marfan syndrome, a genetic disorder that affects the body's connective tissues. From my research, I was able to discover some facts about the Marfan syndrome to understand the disorder better . Below are helpful facts for those who have the syndrome or friends/relative close to them to help them get more enlightened. So here the 5 helpful tips:
1. The disorder is genetic, can be passed from one generation to another, infact, 90 % of known cases are inherited cases ,however, a person can be the first to have it in his family.
2.Early signs of the disorder can be detected , Symptoms include:long limbs, abnormal tallness, heart defects,pains in the legs, back or abdomen , serious headaches, weakening of the spinal cord e.t.c Fatal situation arises if the disorder causes aorta (main blood vessel) enlargement, affects the lungs, skin or nervous system.
3. People with Marfan syndrome are born with it, The syndrome is not contagious and can not be transferred . Infact patients with this syndrome go on to lead fulfilling lives and very intelligent. For instance, I never knew Tunde had any health defect, he was so versatile, a gospel music director,IT engineer and sings beautifully.
4. There is no known cure for the Marfan syndrome, but it can be managed properly to prolong life and give the affected patient a chance to live a quality life. Though the symptoms may manifest later,but early detection helps so as to get preventive medication on time Some medications can be given to slow down health degradation and provide relief for symptoms too. There is ongoing research to find a long lasting solution to this ailment.
5. Having the right knowledge, early diagnosis and proper care can help save lives and prevent life threatening situations.
For more information, consult a medical personnel or visit the following sites
Rest on Akintunde!!!
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